Resource Links

Patient Support Organizations

Research and Clinical Trial Resources

  • ClinicalTrials.gov
    Searchable database which provides patients, family members and the public with information about current ongoing clinical research studies.
  • Northeast ALS Consortium
    The Northeast ALS Consortium (NEALS) clinical research aimed at improving patient care and disease understanding of ALS.
  • ALS Genetic Mutation Database
    Alsod.org, the online database for ALS/SOD1 genetic mutations, disseminates up-to-date information on SOD1 associated ALS.
  • fALS Connect – Familial ALS Registry
    The familial ALS (fALS) registry connects fALS families with scientists engaged in familial ALS research.
  • ALS Patient Care Database
    ALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis.
  • ALS Therapy Development Institute
    A non-profit biotech organization that seeks to develop therapies to slow, stop and cure ALS.
  • Prize 4 Life (USA and Israel)
    An international organization seeking to create breakthroughs in effective treatments for ALS using the leverage of large inducement prizes.
  • Prize 4 Life (Israel)
  • IsrA.L.S.
    IsrA.L.S is dedicated to raising awareness and support for A.L.S. patients in Israel.