Resource Links

Patient Support Organizations

  • ALS Association
    The ALS Association supports research and patient services, promotes awareness about ALS, and advocates issues related to ALS.
  • ALS Society of Canada
    ALS Society of Canada supports ALS research and patient care initiatives in Canada.
  • International Alliance of ALS/MND Associations
    An alliance of ALS patient support and advocacy groups worldwide.
  • Motor Neuron Disease Association (UK)
    Motor Neuron Disease Association is a national organization in England, Wales and Northern Ireland dedicated to the support of people with ALS and those who care for them.
  • Muscular Dystrophy Association
    MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research.
  • The Les Turner ALS Foundation
    The Les Turner ALS Foundation provides resources and information to people with Lou Gehrig’s disease.
  • Hope Now for ALS
    Hope Now for ALS is working to expedite access to promising investigational drugs for the current generation of PALS.

Research and Clinical Trial Resources

  • ClinicalTrials.gov
    Searchable database which provides patients, family members and the public with information about current ongoing clinical research studies.
  • Northeast ALS Consortium
    The Northeast ALS Consortium (NEALS) clinical research aimed at improving patient care and disease understanding of ALS.
  • ALS Genetic Mutation Database
    Alsod.org, the online database for ALS/SOD1 genetic mutations, disseminates up-to-date information on SOD1 associated ALS.
  • fALS Connect – Familial ALS Registry
    The familial ALS (fALS) registry connects fALS families with scientists engaged in familial ALS research.
  • ALS Patient Care Database
    ALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis.
  • ALS Therapy Development Institute
    A non-profit biotech organization that seeks to develop therapies to slow, stop and cure ALS.
  • Prize 4 Life (USA and Israel)
    An international organization seeking to create breakthroughs in effective treatments for ALS using the leverage of large inducement prizes.
  • Prize 4 Life (Israel)
  • IsrA.L.S.
    IsrA.L.S is dedicated to raising awareness and support for A.L.S. patients in Israel.