Resource Links

Patient Support Organizations

  • ALS Association
    The ALS Association supports research and patient services, promotes awareness about ALS, and advocates issues related to ALS.
  • ALS Society of Canada
    ALS Society of Canada supports ALS research and patient care initiatives in Canada.
  • International Alliance of ALS/MND Associations
    An alliance of ALS patient support and advocacy groups worldwide.
  • Motor Neuron Disease Association (UK)
    Motor Neuron Disease Association is a national organization in England, Wales and Northern Ireland dedicated to the support of people with ALS and those who care for them.
  • Muscular Dystrophy Association
    MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research.
  • The Les Turner ALS Foundation
    The Les Turner ALS Foundation provides resources and information to people with Lou Gehrig’s disease.
  • Hope Now for ALS
    Hope Now for ALS is working to expedite access to promising investigational drugs for the current generation of PALS.

Research and Clinical Trial Resources

    Searchable database which provides patients, family members and the public with information about current ongoing clinical research studies.
  • Northeast ALS Consortium
    The Northeast ALS Consortium (NEALS) clinical research aimed at improving patient care and disease understanding of ALS.
  • ALS Genetic Mutation Database, the online database for ALS/SOD1 genetic mutations, disseminates up-to-date information on SOD1 associated ALS.
  • fALS Connect – Familial ALS Registry
    The familial ALS (fALS) registry connects fALS families with scientists engaged in familial ALS research.
  • ALS Patient Care Database
    ALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis.
  • ALS Therapy Development Institute
    A non-profit biotech organization that seeks to develop therapies to slow, stop and cure ALS.
  • Prize 4 Life (USA and Israel)
    An international organization seeking to create breakthroughs in effective treatments for ALS using the leverage of large inducement prizes.
  • Prize 4 Life (Israel)
  • IsrA.L.S.
    IsrA.L.S is dedicated to raising awareness and support for A.L.S. patients in Israel.