Patient Support Organizations
- ALS Association
This organization supports research and patient services, promotes awareness about ALS, and advocates issues related to ALS.
- ALS Society of Canada
This organization supports ALS research and patient care initiatives in Canada.
- International Alliance of ALS/MND Associations
An alliance of ALS patient support and advocacy groups worldwide.
- Motor Neuron Disease Association (UK)
A national organization in England, Wales and Northern Ireland dedicated to the support of people with ALS and those who care for them.
- Muscular Dystrophy Association
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research.
- The Les Turner ALS Foundation
Provides resources and information to people with Lou Gehrig’s disease.
- Hope Now for ALS
This organization is working to expedite access to promising investigational drugs for the current generation of PALS.
Research and Clinical Trial Resources
Searchable database which provides patients, family members and the public with information about current ongoing clinical research studies.
- Northeast ALS Consortium
The Northeast ALS Consortium (NEALS) clinical research aimed at improving patient care and disease understanding of ALS.
- ALS Genetic Mutation Database
Alsod.org, the online database for ALS/SOD1 genetic mutations, disseminates up-to-date information on SOD1 associated ALS.
- fALS Connect – Familial ALS Registry
The familial ALS (fALS) registry connects fALS families with scientists engaged in familial ALS research.
- ALS Patient Care Database
ALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis.
- ALS Therapy Development Institute
A non-profit biotech organization that seeks to develop therapies to slow, stop and cure ALS.
- Prize 4 Life (USA and Israel)
An international organization seeking to create breakthroughs in effective treatments for ALS using the leverage of large inducement prizes.
- Prize 4 Life (Israel)
IsrA.L.S is dedicated to raising awareness and support for A.L.S. patients in Israel.